Katy Fetters was posted on August 19th, 2009 at 9.47pm and is filed under . This entry has 17 comments. You can follow any responses through the RSS 2.0 Feed.
Hey Evan!
Thanks for checkin out my blog
Hmm well to answer your question I would just say that most of the time I just try to make the best of any situation whether that is trying to keep up with my friends on a run or staying confident, I just try to believe in myself more than anything. What do you have a hard time coping with?
Hey
Just Wondering if you drive, I have the same Cerebral Palsy as you same side and everything. I went to get my drivers permit and I have to get a Doctors note before I can drive. Did you have to deal with this too? its very annoying, I love my Cerebral Palsy I accept it but I don’t enjoy this.
Yes I can drive..I got my license when I was 16, but I didn’t have to go through the doctors or anything. That’s weird, I’m sorry it’s so complicated for you! Is it possible that it affects how you steer? Because maybe it’s a safety issue. Tell me how it goes!
Hi Katy,
I LOVE what you are doing with this blog! I’m not a teen, but I’m sure my daughter (4 years, sdcp) would subscribe to your blog if she were older. Have you considered being a mentor to younger children, besides just your peers? As you get older, I hope another teen will take up this responsibility…my girl will want to know she isn’t alone!
Sincerely, Amy
Hi Amy!
Thank you! I love doing this, it has been such a pleasure. I haven’t actually considered that, but maybe I’ll keep that job in mind as I continue with my education in the years to come. I hope that I will be able to find someone who wants to do this as well! It will be interesting to see where this takes me
You sound like a very supportive mommy, keep it up.
I’ve been looking online for a place to connect with other teens who have mild CP, like me. It seems impossible, doesn’t it?!
I’m 14 and in the 9th grade in PA (but my mom grew up in South Bay, CA so I know where your school is). I’m not in any special classes or any of that, but I do wear a brace on my right leg and I have to do PT and all that. Right now I don’t know anybody else with CP, and it’s hard sometimes. Seeing your site helps me realize there are other people out there and I would like to meet more of us!
Thank you!! I love this blog, its so fun The whole reason I started it was to connect with teen just like you and me, so I am glad you found this site!
Oh thats cool you know this area, I love it here. Yeah, I know what you mean, it is tough sometimes especially being in high school and being the slightest bit diff… hmm I think your best bet to find some more CP kids is to just go on facebook groups (which i highly reccommend), google ect and search for social networks, and discussion pages. Theres a lot out there, I was pretty surprised myself when I began this whole thing! If you look on some of the “resources” i have posted to the right on my homepage, you might be able to look up some cool stories in there about people with CP. I know a lot of people do frequent my page, and some of the comments are from girls just like us…so maybe join in on the fun sometime and comment, you may connect with some pretty cool TCPers as we call it on here :p Hope to here from you, and you can totally email me if you ever just want to chit chat, im sure we have very similar lifestyles!
Hi,
I’m sitting here in the NICU in Halifax Nova Scotia doing some research on CP which my new born daughter has been diagnosed with. She is slightly premature, born at 36 weeks, but suffered a stroke which caused a grade 2 bleed. The doctors arn’t sure what Kamryn’s outcome will be but I can only hope and pray she turns out as beautiful and healthy as you. The doctors tell us that we just have to wait and watch what she can/can’t do at mile stone moments 3,6,months 1 yr 2 yrs. Her bleed was on the right side of her brain, they say that she could have some motor problems on her left side, not knowing yet how sever. They are not sure if there will be any cognitive problems or not, were hoping and praying for the best. We know that an infants brain can do amazing things, and that we only use 10 percent of our brains. I just wanted to say thanks and that finding your site gave me some new hope today.
Rae-Anne
Rae-Anne,
Wow, I hope that your daughter is doing okay as of now, and is growing healthy and strong! My parents actually were told that, because of a “level 5″ bleed that I experienced, I was going to have a very severe case of CP. However, I have beat the odds and come out ok! So please stay positive and know that you can only do so much for your daughter. Just loving her and treating her all the same as you would a “normal” child is all a child could hope for. I truly believe that I am the way I am because my parents raised me with the same amount of love, care, and with the same treatment as my other siblings. I feel blessed to have grown up with an optimistic and supportive family. Thank you for all of your nice words. Stay strong.
Hello everyone. I thought I would comment and say that I am 29 years old and have mild cp too.I went through so many obstacles when I was younger as far as all of the teasing and starring too. I got through it and have got to say that I enjoy a very normal life. I have two beautiful daughters go to college and have a full time job. It’s a lot of work but it can be done. Right now I am facing my last fear and that is driving. Does anyone have any tips for me. I have no sense of direction and that is causing a lot of problems for me. Take Care.
Hi Stephanie!
Thanks for sharing about yourself and how you’ve dealt with CP over the years. What do you mean, specifically speaking, when you say you have no sense of direction? In the literal sense, do you feel lost when
you drive? Or do you not know where to start when it comes to learning how to drive?
Hope to hear back from you!
Katy
Hey Katy I heard of you thanks to Pam from csnfoundation and I was wondering if you could answer some questions for a research I am doing on cerebral palsy, if its not to much to bother you can contact me at bpina1090@aol.com or (323) 684-4887. Thank you.
Hi Katy- I am trying to connect… I don’t even know if that is the right word… My 6 year old has CP and we just got her a wheelchair…Powered! I am so nervous, I guess nervous of the unknown- ya know ‘what life will be like as she grows up’. I guess all parents are, but basically I am looking to connect to someone who has gone through similer experiences. So, I would love to chat via email if possible. Thanks, Kayla
stephanie-
i know exactly what you mean. I’m 16 and I just got my learner’s permit for driving, and i have absolutely no sense of direction in knowing where i’m going. I can’t even find my way to school and back! Right now my brothers and sister just tease me about it, but I’m starting to get kind of worried about it… oh well, guess i’ll just invest in a good GPS system…
hey katy i was wondering how you cope so well
Hey Evan!
Thanks for checkin out my blog
Hmm well to answer your question I would just say that most of the time I just try to make the best of any situation whether that is trying to keep up with my friends on a run or staying confident, I just try to believe in myself more than anything. What do you have a hard time coping with?
Hey
Just Wondering if you drive, I have the same Cerebral Palsy as you same side and everything. I went to get my drivers permit and I have to get a Doctors note before I can drive. Did you have to deal with this too? its very annoying, I love my Cerebral Palsy I accept it but I don’t enjoy this.
-Kelsey
Hey Kelsey,
Yes I can drive..I got my license when I was 16, but I didn’t have to go through the doctors or anything. That’s weird, I’m sorry it’s so complicated for you! Is it possible that it affects how you steer? Because maybe it’s a safety issue. Tell me how it goes!
Katy
Hi Katy,
I LOVE what you are doing with this blog! I’m not a teen, but I’m sure my daughter (4 years, sdcp) would subscribe to your blog if she were older. Have you considered being a mentor to younger children, besides just your peers? As you get older, I hope another teen will take up this responsibility…my girl will want to know she isn’t alone!
Sincerely, Amy
Hi Amy!
Thank you! I love doing this, it has been such a pleasure. I haven’t actually considered that, but maybe I’ll keep that job in mind as I continue with my education in the years to come. I hope that I will be able to find someone who wants to do this as well! It will be interesting to see where this takes me
You sound like a very supportive mommy, keep it up.
Katy
Hey Katy,
Cool blog. Nice job!
I’ve been looking online for a place to connect with other teens who have mild CP, like me. It seems impossible, doesn’t it?!
I’m 14 and in the 9th grade in PA (but my mom grew up in South Bay, CA so I know where your school is). I’m not in any special classes or any of that, but I do wear a brace on my right leg and I have to do PT and all that. Right now I don’t know anybody else with CP, and it’s hard sometimes. Seeing your site helps me realize there are other people out there and I would like to meet more of us!
Any suggestions? Thanks a lot!
Oriana
Hi Oriana,
Thank you!! I love this blog, its so fun
The whole reason I started it was to connect with teen just like you and me, so I am glad you found this site!
Yeah, I know what you mean, it is tough sometimes especially being in high school and being the slightest bit diff… hmm I think your best bet to find some more CP kids is to just go on facebook groups (which i highly reccommend), google ect and search for social networks, and discussion pages. Theres a lot out there, I was pretty surprised myself when I began this whole thing! If you look on some of the “resources” i have posted to the right on my homepage, you might be able to look up some cool stories in there about people with CP. I know a lot of people do frequent my page, and some of the comments are from girls just like us…so maybe join in on the fun sometime and comment, you may connect with some pretty cool TCPers as we call it on here :p Hope to here from you, and you can totally email me if you ever just want to chit chat, im sure we have very similar lifestyles! 
Oh thats cool you know this area, I love it here.
Katy
Hi,
I’m sitting here in the NICU in Halifax Nova Scotia doing some research on CP which my new born daughter has been diagnosed with. She is slightly premature, born at 36 weeks, but suffered a stroke which caused a grade 2 bleed. The doctors arn’t sure what Kamryn’s outcome will be but I can only hope and pray she turns out as beautiful and healthy as you. The doctors tell us that we just have to wait and watch what she can/can’t do at mile stone moments 3,6,months 1 yr 2 yrs. Her bleed was on the right side of her brain, they say that she could have some motor problems on her left side, not knowing yet how sever. They are not sure if there will be any cognitive problems or not, were hoping and praying for the best. We know that an infants brain can do amazing things, and that we only use 10 percent of our brains. I just wanted to say thanks and that finding your site gave me some new hope today.
Rae-Anne
Rae-Anne,
So please stay positive and know that you can only do so much for your daughter. Just loving her and treating her all the same as you would a “normal” child is all a child could hope for. I truly believe that I am the way I am because my parents raised me with the same amount of love, care, and with the same treatment as my other siblings. I feel blessed to have grown up with an optimistic and supportive family. Thank you for all of your nice words. Stay strong.
Wow, I hope that your daughter is doing okay as of now, and is growing healthy and strong! My parents actually were told that, because of a “level 5″ bleed that I experienced, I was going to have a very severe case of CP. However, I have beat the odds and come out ok!
With love and prayer, Katy Fetters
Hello everyone. I thought I would comment and say that I am 29 years old and have mild cp too.I went through so many obstacles when I was younger as far as all of the teasing and starring too. I got through it and have got to say that I enjoy a very normal life. I have two beautiful daughters go to college and have a full time job. It’s a lot of work but it can be done. Right now I am facing my last fear and that is driving. Does anyone have any tips for me. I have no sense of direction and that is causing a lot of problems for me. Take Care.
Stephanie
Hi Stephanie!
Thanks for sharing about yourself and how you’ve dealt with CP over the years. What do you mean, specifically speaking, when you say you have no sense of direction? In the literal sense, do you feel lost when
you drive? Or do you not know where to start when it comes to learning how to drive?
Hope to hear back from you!
Katy
Hey Katy I heard of you thanks to Pam from csnfoundation and I was wondering if you could answer some questions for a research I am doing on cerebral palsy, if its not to much to bother you can contact me at bpina1090@aol.com or (323) 684-4887. Thank you.
I just emailed you
Hi Katy- I am trying to connect… I don’t even know if that is the right word… My 6 year old has CP and we just got her a wheelchair…Powered! I am so nervous, I guess nervous of the unknown- ya know ‘what life will be like as she grows up’. I guess all parents are, but basically I am looking to connect to someone who has gone through similer experiences. So, I would love to chat via email if possible. Thanks, Kayla
Kayla! Please email me anytime you have questions, thats partly what I am here for!
katyfetters@gmail.com
Good luck with everything, I know times are tough and scary, but youll get through it together!
Look forward to hearing from you.
stephanie-
i know exactly what you mean. I’m 16 and I just got my learner’s permit for driving, and i have absolutely no sense of direction in knowing where i’m going. I can’t even find my way to school and back! Right now my brothers and sister just tease me about it, but I’m starting to get kind of worried about it… oh well, guess i’ll just invest in a good GPS system…