Tag: UCP-OC


UCP Benefit Night & More News :)

5
February

Hello All!

I hope the month of January has served you well! I’m glad to be starting a new month, a new week and a new semester! I’ve been a little under the weather and out of sorts the past week or two, but the semester is starting back up tomorrow and I feel ready to get back in the swing of things. I have been extra conscious of my health right now because I don’t want any stress to make my cold worse! That is why I have been putting in the extra minutes in the gym or on the beach path…I feel like both cardio and weight work outs for me, are such a reliever of stress, anxiety, or just anything in excess–that includes food, haha.

I’ve got a lot planned for this spring. This semester may just even go by faster than the last. I think it always happens that way when summer is around the corner…although the weather here has made it feel like summer. What a teaser! Next Saturday, I will be speaking at an event in support of raising money for therapy centers at UCP-OC! How awesome does that sound? I am going to post a flyer invite for any locals out there. Anyone who wants to dress up for a casino night of fun while supporting a great cause is welcome! Just take a peek below for more info, or visit www.ucp-oc.org to purchase tickets! I will say that I am a little nervous to get up there on stage to speak about myself and my CP and involvement in the disability community. It is a great honor but I feel so funny talking about myself for ten minutes! Thankfully, Bonner Paddock who is not only a good friend of mine, but an amazing speaker will be there as well to tell his story and that is a great comfort for me. It will be a great first experience; I just hope I can impress upon people how great this cause is, and inspire them to make a difference. :)

In other news, I plan to help put together a team with UCP to run a 5k in May. I think it will be a great way to raise some money, support a cause with some friends, and have fun at the same time! It’s my goal to get some people from Soka to run it with me, and whoever else feels motivated to. :) This run will be a great start to my training for the Surf City Half Marathon that I am going to do a year from today! Yep, that’s right, I’m going to run my first ever half marathon (13.1 miles)! Every year, about 20,000 people come to run along Pacific Coast Highway and I want to join in on the craze this time. I’ve put a lot of thought into it, and I am determined to turn myself into a runner this year. It will allow me to set a great goal for myself and I think it will be a great activity for me to focus on outside of school and everything else. I would not tell all of you guys if I wasn’t serious about it, so I hope to keep track of my training with everyone here on TeenCP. I hope that you will all support me in this, I don’t expect it to be easy and very much fun! I know I will have my days when I’ll complain and cut my legs off haha, but knowing I can be held accountable by having it in writing will be a great motivator for me. Last part of the annoucement, I will be running the half marathon in honor of UCP-OC, so any of you who would like to sponsor me or just donate to my cause I’d be most grateful to. Since this is just a quick first announcement, I hope to have more details to follow in the next couple of months since this is far off. I don’t have any amount in mind as far as how much I want to raise, but maybe with your help I can start to get a feel for just how much is possible! Have any of you out there done any event similar to this, or for a cause? Any advice or tips? I’d like to hear what you have to say! This also means I’d like to look for new running shoes, so any TeenCPers who know a good brand, go ahead and leave a comment. :)

Alright, well I feel like I am forgetting something, but also rambling at the same time.

More news to come on everything…this is just the beginning, here we go TeenCP!

Take care.

-Katy

 

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SUA Movie Night, among other things :)

23
November

Hello Everybody!

I can’t believe November has come and is already almost over! And Thanksgiving is tomorrow, wow! I don’t know about you all but I cannot wait for some of my mama’s yummy food! I hope you have all been doing good lately… sorry I have been so out of the loop as of late on here…. school has picked up a lot lately. I can’t believe I am already registered for spring semester and planning my concentration! I hosted a movie/fundraising night with a club at Soka and there was a pretty good turn out! About 35 students showed up and we raised nearly $100 (not bad for my first college event, eh? :p) Anyway, we watched Beyond Limits– Bonner Paddock’s film about climbing Mt. Kilimanjaro to raise money to build centers for kids with disabilities. I was so happy to be able to talk a bit about CP and this great cause to my classmates… and while I am here I want to thank Bonner for coming to the showing and talking with everyone afterward about the climb and the OM Foundation, that was really great!

In December a few people from Soka and I are going to UCP-OC’s Friday NIght Club for teens with disabilities to hang and socialize. I am super excited about that! It’s nice that Soka is so cool to the Life Without Limits center, I am excited to show some people what they are really all about! I think it will be a great way to connect with others and who knows, maybe event meet some more teens with CP! :) More to come on that in a few weeks…

On a random note, we started the wheel in ceramics yesterday (that spinny thing that you can make pots and plates on) and I never realized how much work that is on your hands! Having CP on my left side, definitelt does not exclude my hand! Has anyone ever had any difficulty with ceramics or anything like that? I didn’t realize how easily it could fatigue my hand haha.

Well I am on the run once again– Off to Big Bear Mountain for a few days with my family, yay! I hope it snows… Take care everyone, happy holidays and for those of you traveling, please do so safely!

-Katy

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UCP-OC feature & a quote of the night…

16
September

Hello TeenCP!

Before I start, what do you guys think of the new latout? Some of my older posts won’t have a featured image, but I’m still working out all the kinks (with all the tech skills that I have of course, ha!)

Anyway, how awesome is this: United Cerebral Palsy of Orange County is now having me write a monthly post on their blog talking about being a young adult with CP! It is great to bring in such a unique aspect of having CP than most people at UCP are used to…many of the visitors are parents of young children with disabilities, so I am interested to hear their reaction from my thoughts and experiences. I am feeling pretty excited about this, because it brings forth a whole new spectrum of people within this community I would have never had the pleasure of writing to had I not started this blog two years ago! And really when it all comes down to it, I am only in this position because of you all who continue to read my blog! So I thank you for keeping me motivated to keep on writing even when the goings get tough.

Here http://ucpoc.wordpress.com/2011/09/16/lifes-a-journey-with-cp-and-me/ is a link to the little feature for you all to read, but just know that you guys are my number ONE go-to people in the blogging world! I have been doing a lot of writing about CP on OMF and now UCP-OC, (see blogroll on the right) but TeenCP always has been and always will be my home base :) No one knows any better about living with CP as a teen than you all on here, right?? Anyway, what I am truly getting at is, I am feeling truly blessed right now, to be able to speak out to so many people on so many different levels.
Most importantly, I feel I owe this all to the  TeenCP followers and all the moral support you guys give me…I know there is never much action going on in the comments, but some of your emails that I receive make me smile and make this all worth while. Your words help me when I am down just as much as you think that I my experiences help you.

I had a thought jumbled up in my mind all day after I spoke with a friend yesterday about my transition from my home life to college life… and I translated it into this:

The truth may be shameful, it may seem bleak… But recognizing that truth shows that you are not weak.

Over the past few weeks, I have definitely enjoyed the process of transitioning into college, don’t get me wrong here… but lately I’ve been just having some troubling facing some truths of my own. I have been making things so difficult for myself I think, at school…It’s like once the semester came I immediately wanted to crawl up in the fetal position and say NOOOO life is starting!! When instead, I couldn’t see the exciting part of that (YAYYY life is starting!! I am free to be ME all on my own!) And slowly, I am turning my thoughts into positive ones…I am still learning that life is not supposed to be easy, life is about challenges and overcoming those challenges, and living it to the fullest more importantly… change is not always going to be easy… and CP doesn’t make it any easier my any means. I worry about my health, stretching and all of the other fun stuff about having CP brings forth.  This dramatic change that I am experiencing as I begin life on my own is making me realize all of this in the truest sense.

Back to what I was saying earlier, once I got off the phone with my friend, it was almost as if a wave of relief washed over me… My friend is right, this is my time, I am free to become who I am meant to be….I am not tied down by anything or anyone! The freedom is intimidating, but it is refreshing. I think that in order to make the most of this newfound freedom, I have to let go of any self doubt I hold, let go of my CP, let go of anything that is holding me back from being strong and CONFIDENT and go for it. Do any college CP friends have any advice out there? Anything you guys learned during a tough change in your life that you would like to share? I think we would all love to hear about it! I hope my honesty allows you to feel like you can be honest on here as well… we are all in this CP thing together, right?

Alright, I am mentally, emotionally, and physically tired now…

Goodnight all!

-Katy

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4 comments » | New Experiences, School-- HBHS & SUA!

Europe Bound, TeenCP Style!

3
July

Hello Hello!

Happy 4th of July!! (well, almost) I hope you are all outside enjoying summertime with family and friends–I sure am!

Well, it’s time…I am off to Europe tomorrow morning for three whole weeks! I actually still need to pack, yikes, talk about procrastination! Before I do go, I want to leave you all with something interesting to ponder over the time that I am gone… this film was brought to my attention by a young woman, Elizabeth, who is interning at UCP-OC. It’s called Certain Proof: A Question of Worth and I’ll post the trailer here to see for yourself because I’d love to explain it to you in depth, but I have yet to see it myself! When I have some downtime before college begins, I’d love to watch this, but since I can’t right now, maybe you can fnd a copy yourself! (Or maybe it’s in independent theaters, I don’t know haha…) Here you go! Let me know what you think, because this has always been, and probably always will be a controversial issue for CP kids in public schools. http://www.youtube.com/watch?v=HJ2qzMZDzoE I am intrigued by the description quote, “How do you communicate when the world just does not understand”…. this is so true with CP! Of course I do not have CP to the extremity than many people, but I am sure many of you out there can relate to this quote…. It is hard to explain that CP does not affect the brain’s intelligence level. I have been doubted a few times before, so I realize the truth to this powerful question.

Alright guys, I NEED to get packing!! This is a serious problem. It’s about 5:30pm my time…. I got this! I’d love to write more about what has been going on and all that and talk to you all about some ideas I have for a new direction for TeenCP, but I’ll let the anticipation sink in some more ;) Have a fantastic July everyone! I will be taking a short leave in case I can’t get internet access… if not…pics will be posted!

Oh and, TeenCP’s 2nd birthday is coming up July 26th, how exciting, can you believe it? 

Goodbye for now my TeenCP friends! Happy travels, relaxing times, whatever you do with your July, I hope it treats you well.

-Katy

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2 comments » | New Experiences, Random

Happy St. Patty’s Day TeenCP

17
March

Hi Everyone!

Gosh, what a busy week! I started my new job as a receptionist at a hair salon…and let me tell you, working downtown Huntington Beach (bars galore) on St. Patricks Day is craaazy. People running in and out and the phones ringing off the hook… no wonder why they say girls are better multi taskers! Just kidding :p

I just wanted to stop in an say hi to all my TeenCP friends all over the world! I hope you had a fantastic week, and are looking forward to a great, relaxing weekend. Can you believe it is mid March already? Wow, I sure can’t..pretty soon it will be summer time and I will be off to France for the summer with my sis, yay! Any fun summer plans for you?

Ahh well aside from all the fuss about my busy life…I just went for a jog today, and I have been noticing that the top of my ankle (on my non-cp side) was killing me…I could not tell if it was my bone or muscle aching, but it was in the oddest spot, and the only thing I could possibly conclude is that my right leg is over compensating too much, and now all my different joints are feeling the effects off it. :( I think I should take up a consistent yoga class…that should do the trick. What do you think? Anything you could recommend I do to lessen the pressure on my joints, muscles ectt? It makes me sad that I cannot run the way I used to. Hmm…I think my soreness may also be due to the fact that I went on an extremely strenuous hike this past Sunday. (Pic up top is from the hike–so pretty– the scenery is a part of what keeps me going!) I don’t even know where to begin, I was so not mentally prepared for the inclines and the slippery gravel. But I did it, and I was limping around extra bad the rest of the day…it was worth the accomplished feeling I felt afterward though…because there were some people who were “normal” and they didn’t even finish. So ha! There’s dis-abilityfor all those underestimaters. ;p Haha I hope you know I am not completely serious…but I mean c’mon, you have to admit its at least 3x harder for us CPers to do any sort of physical activity, I can’t help but point out how great I feel when I am more physically able than someone who does not deal with CP. Empowering, almost…to accomplish something unexpected like that. It’s like when I saw the hill before me, I told myself there was NO way I was going to make it…but I surprised myself, and that is the greatest form of self-motivation ever. Have you ever had that moment where you just WOWed yourself? I hope so! It is an incredible feeling to push yourself past failure.

Well, I told myself I would not ramble on, I need some sleep before another busy day begins! Gotta love Fridays though…and speaking of tomorrow, I am going to meet with some great interns from UCP-OC to talk about some media awareness “stuff” for CP. I love to “represent” us teens and be apart of something big like that. How exciting this all is…even if it is just eing able to share my experiences with how this website has come to be what it is today..so honored!

Well, goodnight and stay lucky all you Irish TeenCpers! ;)

Happy Friday & Take Care.

-Katy

*Such an incredible view from the top of a park in Orange, CA last Sunday with my family and friends!*

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